Sofia Strong!

Fundraising in honor of Sofia Marie Jones to help find a cure for children living with CHD.

Why We Walk

I want to express my heartfelt thanks for taking a moment to visit my fundraising page.

My commitment to making a difference has led me to participate in the Congenital Heart Walk, an event that carries immense significance for me. It's not just a walk; it's a stride toward changing lives. As many of you may know my daughter, Sofia, was born with a congenital heart defect.  CHD does not run in our family but it still happened to us with our first born.  Sofia was diagnosed with a moderate perimembranous VSD in utero (suspected about 28 weeks gestation).  Sofia was also growth restricted which made our situation a little more difficult.  Our daughter was born 10/01/22 weighing 3lbs 11oz at 36 weeks.  She was later diagnosed with 2 VSDs, 1 ASD, Mesocardia, juxtapositional atrial appendage, and an overriding aorta.  After 34 days in the NICU she was sent home to be quickly readmitted to the PICU due to fluid overload in her lungs due to her heart problems which turned into feeding intolerance.  Open heart surgery took place when Sofia was 8 weeks old.  She had a complication after surgery- hemidiaphramatic paralysis causing her lung to collapse.  Sofia spent a total of 55 days in the hospital.  Today, despite her uphill battle, she is thriving.  Sofia Marie is a happy toddler that keeps us on our feet! 

This endeavor is all about supporting The Children's Heart Foundation and their crucial mission - advancing the diagnosis, treatment, and prevention of congenital heart defects through groundbreaking research.

I warmly invite you to become a part of this significant journey by supporting my fundraising efforts. Together, we can raise the funds essential to drive forward life-saving research that has benefited our own daughter. Your contribution holds immeasurable value to my family.

Thank you for your generosity, and for standing beside me in this mission. Your support means the world to us.

My Badges

View All Event Badges

$225.00

achieved

$1,000.00

goal

of your goal reached

0

days

0

hours

0

mins

0

secs

My Supporters

  • Paul & Laura Ryerson January 2024 $100.00
  • Jacqui Richardson January 2024 $50.00
  • Jenna Jones January 2024 $75.00
  • Paul & Laura Ryerson January 2024 $100.00
  • Jenna Jones January 2024 $75.00
  • Jacqui Richardson January 2024 $50.00