Being the mom of Baby Hadleigh has been quite a journey! From traveling to and from Children's Hospital Colorado every single day of her little life (minus one after she coded post-op and my brain couldn't take seeing that again), to all the adventures we have had since... I'm excited to see her grow and thrive!
When I was pregnant, I found out quite early that she'd be born with CHD (Tetrology of Fallot). Thankfully, this isn't the worst diagnosis although it is a life-long disease. This was not caused by genetics or anything under our control, just a blip in the gene making process. She not only had to struggle with her heart, she also has Pierre Robin syndrome (tiny jaw), and a cleft pallet. Because of the cleft pallet, she couldn't eat like a normal baby would from a bottle or breast feed, so she has a feeding tupe only for the time being until she nails how to eat and swallow post-repair!
We do four different types of therapies thanks to Early Intervention and our home care company (PT, OT, Speech, Feeding) and frequent the library programs all over our area.
Hadleigh is doing amazing: almost walking, talking in her own little language, loving her puppy brothers, and devloping her own unique weird personality. She's very observent and doesn't mind being left to do some "solo play", but all in all she just wants to learn more about her world esspecially how things work.
This summer we plan to be swimming and hiking around Colorado with the dogs when we're not in therapy sessions or other random things I've signed us up for.