Chicago Congenital Heart Walk

Thanks for your support on our journey!

If you know Josh, you know he's just like most other 4-year-old boys: loves cars, trucks, dinosaurs, and building things. His twin brother Jake is his bestie; together they have wild imaginations and love to get their hands dirty.

But what most people don't see is that Josh has a very complex and severe congenital heart defect. Shortly after birth, Josh was diagnosed with a single ventricle heart defect known as pulmonary atresia and unbalanced AV canal. His care plan has included 2 open heart surgeries to date, along with more procedures, x-rays, labs, and hospital visits than we can count. He'll need a lifetime of monitoring and care. (Watch more about Josh's journey here.)

Today's research tells us that kids born with single ventricle defects like Josh's face a 40% chance of transplant or death by the time they reach 25 years old. But every day, research and treatments improve, giving us so much hope for Josh's future. That's why we support organizations like The Children's Heart Foundation -- whose crucial mission is advancing the diagnosis, treatment, and prevention of congenital heart defects through groundbreaking research.

Thank you for supporting our family as we all face this journey together. With your help, we can change lives for kids with congenital heart disease.