We're truly grateful for your visit to our team page!
Together, the family of Baby Hadleigh will unite to walk (which she officially is!) to raise awareness and money for research into her life long genetic condition!
Through our long journey so far, we didn't start a Gofundme, although it would have been nice... But we really would rather have money go to helping the whole CHD community and not just a selfish donation! (We aren't opposed to gift cards though!).
As stated on my personal donation page so I don't have to rewrite her whole novel and re-live the memories again and again...:
Being the mom of Baby Hadleigh has been quite a journey! From traveling to and from Children's Hospital Colorado every single day of her little life (minus one after she coded post-op and my brain couldn't take seeing that again), to all the adventures we have had since... I'm excited to see her grow and thrive!
When I was pregnant, I found out quite early that she'd be born with CHD (Tetrology of Fallot). Thankfully, this isn't the worst diagnosis although it is a life-long disease. This was not caused by genetics or anything under our control, just a blip in the gene making process. She not only had to struggle with her heart, she also has Pierre Robin syndrome (tiny jaw), and a cleft pallet. Because of the cleft pallet, she couldn't eat like a normal baby would from a bottle or breast feed, so she has a feeding tupe only for the time being until she nails how to eat and swallow post-repair!
We do four different types of therapies thanks to Early Intervention and our home care company (PT, OT, Speech, Feeding) and frequent the library programs all over our area.
Hadleigh is doing amazing: almost walking, talking in her own little language, loving her puppy brothers, and devloping her own unique weird personality. She's very observent and doesn't mind being left to do some "solo play", but all in all she just wants to learn more about her world esspecially how things work.
This summer we plan to be swimming and hiking around Colorado with the dogs when we're not in therapy sessions or other random things I've signed us up for.
Our team is walking with purpose this year—celebrating 30 incredible years of The Children's Heart Foundation funding research that saves lives! Every 15 minutes in the United States, a baby is born with a congenital heart defect, making CHDs the most common birth defect in our country. For three decades, CHF has been the driving force behind the treatments and surgical advances that have transformed survival rates and given countless children with CHD the chance to thrive.
The Congenital Heart Walk is dedicated to making this impact continue. Our mission is clear—we aim to raise funds to support The Children's Heart Foundation's quest to advance the diagnosis, treatment, and prevention of CHDs by funding groundbreaking research that improves outcomes, reduces complications, and helps Heart Warriors live longer, healthier lives.
We invite you to join our team in honoring this legacy. By supporting our team or walking with us, you're contributing to research that can save and enhance the lives of infants born with CHDs, as well as children and adults living with these conditions. Together, we're part of a 30-year story of hope—and we're writing the next chapter. Your support makes a significant impact, and for that, we want to say a heartfelt thank you.
Will you join us in making a real difference? Please consider supporting our team or walking with us. Every step we take together celebrates how far we've come and funds the miracles still ahead.