Working to Fund a Better Chance at Life

The treatment for HLHS is palliative. There is no cure.

Svea Strrong

I want to express my heartfelt thanks for taking a moment to visit my fundraising page.

My commitment to making a difference has led me to participate in the Congenital Heart Walk, an event that carries immense significance for me. It's not just a walk; it's a stride toward changing lives. This endeavor is all about supporting The Children's Heart Foundation and their crucial mission - advancing the diagnosis, treatment, and prevention of congenital heart defects through groundbreaking research.

Our daughter, Svea, was born with a complex congenital heart defect called Hypoplastic Left Heart Syndrome (HLHS).  Essentially the left side of her heart did not develop, and she was born with half a heart.  We do now know why she developed this condition as there is no genetic component in her case.  We did learn that without surgical intervention, the diagnosis is 100% fatal.  Even then, the surgeries act as a palliative repair.  At this time, there is no cure.  Our beautiful Svea will always be at high risk for heart failure. 

To date, Svea has had three open heart surgeries all before 7 months of age.  She spent 113 days in the hospital her first year of life.  She is considered single ventricle and is tentatively scheduled to have her final surgery next summer.  Despite all odds, she is thriving.

I warmly invite you to become a part of this significant journey by supporting my fundraising efforts. Together, we can raise the funds essential to drive forward life-saving research such as finding a cure for HLHS. Your contribution holds immeasurable value to me.

Thank you for your generosity, and for standing beside me in this mission. Your support means the world.

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    Awarded 08/18/2024

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    Awarded 08/18/2024

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