Thank you for visiting my fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to me.
My sister Emily, was diagnosed with Hypoplastic Left Heart Syndrome (HLHS) in utero at 24 weeks. Our journey from there has been full of ups and downs but thankfully Emily is 7 years old and doing amazing. She has had 3 open heart surgeries and 5 cardiac cath lab procedures.
There is no cure for Emily's CHD only the set of three palliative care surgeries to hopefully give her a long, happy life. In May 2021, she underwent her third planned surgery, the Fontan. While this is exciting to think most major surgeries are behind us (hopefully) it’s also a little bit scary to think if she needs further intervention a heart transplant may be our only option. We are trying to change that by raising money for The Children's Heart Foundation to increase research for more options not only for Emily’s future but also for all kiddos with CHDs!
We hope you will join us on September 27th for the walk at Queeny Park! Please consider joining our team and/or making a donation. No donation is too small; even $5 helps! Without donations and research these surgical options would not have been available to my Emily. Thank you for joining our team and donating to this life saving organization.