Thank you for visiting my fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to me.
I was diagnosed with Hypoplastic Left Heart Syndrome (HLHS) when I was in my mommy's tummy. My journey from there has been full of ups and downs but thankfully I am 7 years old and doing amazing. I have had 3 open heart surgeries and 5 cardiac cath lab procedures.
There is no cure for my CHD only the set of three palliative care surgeries to hopefully give me a long, happy life. In May 2021, I underwent my third planned surgery, the Fontan. While this is exciting to think most major surgeries are behind us (hopefully) it’s also a little bit scary to think if I need further intervention a heart transplant may be our only option. We are trying to change that by raising money for The Children's Heart Foundation to increase research for more options not only for my future but also for all kiddos with CHDs!
We hope you will join us on September 27th for the walk at Queeny Park! Please consider joining our team and/or making a donation. No donation is too small; even $5 helps! Without donations and research these surgical options would not have been available to me. Thank you for joining our team and donating to this life saving organization.
