St. Louis Congenital Heart Walk

Auggie was prenatally diagnosed with double inlet left ventricle, dextrocardia, pulmonary atresia, total anomalous pulmonary venous return, transposition of the great arteries, dextrocardia, and cardiac situs inversus. In English, he's missing a whole lot of parts (no right ventricle!) and the other parts are doing the opposite of what they should.

Auggie's first major open heart surgery was at six days old. He had a stroke during the next surgery, resulting in mild cerebral palsy. He still vividly remembers his most recent heart surgery at age four and knows that more are in his future. Despite all of this, Auggie has the most zest for life that I've ever seen. He's animated, hilarious, and has the kindest heart, always attuned to the emotions of others and trying to bring them happiness. He accepts his limitations and differences while giving his full effort to his treatment and therapies. He is truly one of a kind!

What Auggie's been through and will face in the future isn't fair at all, but it's not so far in the past that these diagnoses would have had no treatment options. We are so grateful for organizations like Children's Heart Foundation whose mission is "advancing the diagnosis, treatment, and prevention of congenital heart defects through groundingbreaking research." There are promising studies being funded even now that we hope may be an option for Auggie in the future to help him live a longer life. Please join our team, donate, or share our fundraising page!