Monroe Kate Lefort, now a thriving 2 year old was born with a rare Congenital Heart Disease (CHD), Double Outlet Right Ventricle: Tetralogy of Fallot.
Discovery
Most CHDs are not detectable via ultrasound prenatally because the mothers heart is doing almost all of the work. During the standard newborn screening immediately after birth, a murmur was detected and again verified 24-hours post-delivery. Her first of many ECHOs was conducted and it was the first time that Monroe cried since birth; she began to turn blue. Within minutes after completing the exam, a team of cardiologist entered, Monroe was admitted into the NICU and her diagnosis was made.
Her First Surgery
Preparations began for her first open heart surgery to take place at 3 months old. The average oxygen level is between 95 – 100 with a low 02 reading being 91; Monroe was averaging 65 in the days leading up to surgery. Each time she would get worked up or cry, her oxygen levels would drop at a significant rate and oxygen would have to be administered. A 3 month old heart is approximately the size of a kiwi; Monroe’s hole was approximately .5in and her pulmonary valve was more than 2x smaller than it should be. The valve was unable to be saved and a patch was put into place to close the hole. A common misconception is that this is an isolated disease that is resolved with surgery, however it is in fact a life-long condition that must be clinically followed. Each person is different but it is anticipated that Monroe will need her first valve between the ages of 5 – 10yrs old. It is averaged that a valve can last between 5 – 7yrs but can be less or more.
Life After Surgery
Monroe has fully recovered from her first surgery and is thriving; she has so much conviction, is fearless and loves to break bread (or take it) from anyone – she leaves every person she meets with a hug or two and is a true marvel. I want to express my heartfelt thanks for taking a moment to visit our fundraising page and learn a little about her journey.
A Mother's Purpose
The Congenital Heart Walk carries immense significance for me. It's not just a walk; it's a stride toward changing lives. This endeavor is all about supporting The Children's Heart Foundation and their crucial mission - advancing the diagnosis, treatment, and prevention of congenital heart defects through groundbreaking research. If we have learned anything, it is that we are nothing without our community - without you! It is only through your support that we were able to face the challenges of the past and know that we will/can again in the future.
I warmly invite you to become a part of this significant journey by supporting my fundraising efforts. Together, we can raise the funds essential to drive forward life-saving research. Your contribution holds immeasurable value to me.
Thank you for your generosity, and for standing beside me in this mission.
The Lefort Family
_________________________________________
Interested in a Never Walk Alone team shirt? Ordering available until 9/26
Order Now
