We are walking and raising funds on behalf of our son and our little heart warrior, Jesse Albert. During the 20-week ultrasound we received the difficult news that our son would be diagnosed with Hypoplastic Right Heart Syndrome (HRHS), specifically Tricuspid Atresia. At just 6 days old, Jesse underwent his first open heart surgery; A pulmonary band procedure. When he was four months old, he bravely underwent his Bidirectional-Glenn heart surgery. Jesse underwent his third heart surgery in the Spring of 2023 to receive the Fontan procedure. Like so many children who have congenital heart disease Jesse has fought so bravely, not only to get through heart surgeries, but numerous blood labs, echo-cardiograms, countless X-rays, and other doctor’s appointments.

Today, Jesse is such a smiley, strong, smart, and determined four-year old, who teaches us daily the value and fragility of our lives here. He goes to school, plays soccer, live life to the fullest, and is the best big brother. Please join us in raising funds on behalf of our heart warrior in order to continue the important lifesaving research that our son, and many others have greatly benefitted from. It is because of this research and developments in modern medicine that have given us invaluable time and moments with our little boy. We thank everyone who have supported and will continue to support us and Jesse through his life journey.