Our Team Fundraising Page

Our brave boy, John Thomas, was born a warrior. He was diagnosed with Truncous Arteriosus when I was 22 weeks pregnant. He has had 2 open heart surgeries, the first one at 5 days old, the second at 6 days old. He spent 32 days in the Infant Cardiac ICU. He has been through so much in the short time he has been alive and yet he wakes up every day with a smile that can light up the world. He is our hero. 

Currently, the survival rate for John's surgery is over 90%. I hope one day it will be 100% and research is the key to improving those odds. 

We will be walking with our little heart warrior, JT ! This event is near and dear to our hearts as JT will need future surgeries and interventions as he continues to grow, ulitmately outgrowing his conduit. Funding is so important to develop and improve treatments for these miracle babies , including John. 

Thank you !! We love you all 

Joanne, Thomas & JT 

 

Thank you for visiting our team page! Every 15 minutes, a baby in this country is born with a congenital heart defect, making CHDs America's most common birth defect. The Congenital Heart Walk is dedicated to raising funds to support The Children's Heart Foundation's mission: to advance the diagnosis, treatment, and prevention of CHDs by funding the most promising research.

Will you join us? By supporting our team or joining us in our walk, you're supporting research that will help save and improve the lives of babies born, and children and adults living, with CHDs. Thank you!

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Our Supporters

  • Kristina & Scott Glicksman June 2023
  • Dana Christiano June 2023 $103.00
  • Thomas Powers June 2023 $103.00
  • Joanne Dowling June 2023 $75.00
  • Joanne Dowling June 2023 $100.00
  • Dana Christiano June 2023 $103.00
  • Thomas Powers June 2023 $103.00
  • Joanne Dowling June 2023 $100.00
  • Joanne Dowling June 2023 $75.00