Team Brylie 2023
Thank you for visiting my fundraising page! I am participating in the Congenital Heart Walk to support the mission of The Children's Heart Foundation: to advance the diagnosis, treatment, and prevention of congenital heart defects by funding the most promising research.
Raising funds for Congenital Heart Defects research is critically important to all heart warriors, and heart angels, and personally very important to me. 1 in 110 babies are born with a heart defect. My daughter Brylie was born with HLHS. She was not diagnosed at 20 weeks gestation as most other babies with this severe defect. She was diagnosed at 3 days old as her health continued to decline. She was the happiest baby I have ever known despite spending her first 5 months of life in the cardiac ICU. She only lived a very short 11 months because doctors ran out of options to help her. Brylie fought a good fight while she was here and it is only because of the medical research and funding that she was even given a chance, but these babies deserve a better life and a real chance. The parents and families of CHD warriors deserve to have hope for their baby's future. This is why funding research is so important to me. I will spend the rest of my life making sure to honor the memory of our daughter the heart warrior. I can only hope that you will join me in raising funds. It is my goal to bring awareness to everyone I meet and lend a helping hand to many families facing CHD. This is just the beginning. Together we can make a difference.
I hope you'll join me by supporting my fundraising efforts as I work to raise funds for life-saving research.
Will you join us? By supporting our team or joining us in our walk, you're supporting research that will help save and improve the lives of babies born, and children and adults living, with CHDs. Thank you!
- Jessica Schliesman $1,000.00
- Erick Curtis $280.00
- Courtney Curtis Team Captain $260.00
- Teresa James $203.00
- David Cagle $150.00
- Zach Resler $120.00
- nevaeh aleman $105.00
- Kristin Tveit $100.00
- Shaley Brewer $100.00
- Michael Schliesman $81.00
- Alexandria Daves $77.25
- Mckenzie Tucker $77.25
- christopher Holmes $77.25
- Caylie Daves $77.25
- Brittany Camden $77.25
- Diane Holbrook $75.00
- Jonathan Tveit $0.00
Finally home from another long hospital stay. This was her reaction to sitting in her chair for the first time in a while. lol
No matter how dark and scary things were, Brylie was the light in the room.
In Nana's arms was Brylie's favorite place to sleep.
It took a team of 5 people to mover her from the hospital bed into our arms, but it was worth the work every time.
Daddy bought Brylie a mobile and they both stared for hours. It was one of the first baby things we were able to share with her.
Leaving the hospital for the very first time in her life at 5 1/2
When I dreamed of becoming a mother, I never imagined that it would be 5 and 1/2 month stay in the hospital to be sent home on Hospice. I always Hospice was for old people who have lived their entire lives. The medical team ran out of options to treat my baby. There is no cure for CHD. This is why we are raising funds for research. Our hope is that one day no baby will have to leave the hospital on Hospice care because their Congenital Heart Defect could no longer be treated.
Team BadgesView All Event Badges
- View More Recent Activity