Western Michigan Congenital Heart Walk

About Our Team

Hello!

Thank you for visiting our fundraising page! We are participating in the Congenital Heart Walk to support the mission of The Children's Heart Foundation: to advance the diagnosis, treatment, and prevention of congenital heart defects by funding the most promising research.

We hope you'll join us by supporting my fundraising efforts as we work to raise funds for life-saving research.

Raising funds for Congenital Heart Defect (CHD) research is not only critically important to all babies born with, and children and adults living with CHDs, it is also personally meaningful to us.

Our CHD Story

Our son, Lincoln, was born on February 15, 2022 with a critical CHD called Hypoplastic Left Heart Syndrome (HLHS). We recieved his diagnosis at our 20 week fetal anatomy ultrasound. HLHS is a very rare heart defect (about 1 in 5,000 babies are born with it each year). Essentailly, the left side of his heart was severely underdeveloped and couldn't pump the oxygen rich blood out to his body.

We fully anticipated a series of 3-4 open heart surgeries within his first 3 years of life to help our little man thrive. Unfortunately, due to the HLHS and a severe infection, Lincoln gained his angel wings during open heart surgery 8 days after brith on February 23, 2022.

Now What?

Join our team! We're trying to raise $1,000 this year for CHD research in memory of our little Lincoln log. You can donate here and/or join us at the Congential Heart Walk on August 20th in Grand Rapids! We thank you for helping to further research and awareness for this special cause.

Love,

Rosalie, Adam, Angel Baby Lincoln, and Landon Brege