Discovery
Most CHDs are not detectable via ultrasound prenatally because the mothers heart is doing almost all of the work. During the standard newborn screening immediately after birth, a murmur was detected and again verified 24-hours post-delivery. Her first of many ECHOs was conducted and it was the first time that Monroe cried since birth; she began to turn blue. Within minutes after completing the exam, a team of cardiologist entered, Monroe was admitted into the NICU and her diagnosis was made.
Her First Surgery
Preparations began for her first open heart surgery to take place at 3 months old. The average oxygen level is between 95 – 100 with a low 02 reading being 91; Monroe was averaging 65 in the days leading up to surgery. Each time she would get worked up or cry, her oxygen levels would drop at a significant rate and oxygen would have to be administered. A 3 month old heart is approximately the size of a kiwi; Monroe’s hole was approximately .5in and her pulmonary valve was more than 2x smaller than it should be. The valve was unable to be saved and a patch was put into place to close the hole. A common misconception is that this is an isolated disease that is resolved with surgery, however it is in fact a life-long condition that must be clinically followed. Each person is different but it is anticipated that Monroe will need her first valve between the ages of 5 – 10yrs old. It is averaged that a valve can last between 5 – 7yrs but can be less or more.
Life After Surgery
Monroe has fully recovered from her first surgery and is thriving; she has so much conviction, is fearless and loves to break bread (or take it) from anyone – she leaves every person she meets with a hug or two and is a true marvel. I want to express my heartfelt thanks for taking a moment to visit our fundraising page and learn a little about her journey.
A Mother's Purpose
The Congenital Heart Walk carries immense significance for me. It's not just a walk; it's a stride toward changing lives. This endeavor is all about supporting The Children's Heart Foundation and their crucial mission - advancing the diagnosis, treatment, and prevention of congenital heart defects through groundbreaking research. If we have learned anything, it is that we are nothing without our community - without you! It is only through your support that we were able to face the challenges of the past and know that we will/can again in the future.
I warmly invite you to become a part of this significant journey by supporting my fundraising efforts. Together, we can raise the funds essential to drive forward life-saving research. Your contribution holds immeasurable value to me.
Thank you for your generosity, and for standing beside me in this mission.
The Lefort Family